Read About Even Flo - Yet Another Natural Supplement to Manage Sickle Cell!

I just noticed that SS Natural Healings, which I have a subscription to but almost never read (lack of time/I forget) just posted about EvenFlo, which is a natural supplement to treat sickle cell. I have copied and pasted the first paragraph of the original post, and there are links to the post here as well. 


Post copied from:
http://ssnaturalhealings.blogspot.com/2015/05/even-flo-natural-supplement-to-manage.html

"Even Flo - Natural supplement to manage Sickle Cell disease! 

Even Flo is a natural pain reliever, which contains the highest quality herbal extracts and nutraceuticals, was created to manage pain in sickle cell patients and decrease the frequency of crisis they experience. The product has undergone rigorous clinical tests and has shown none of the side effects usually associated with prescription pain medications. EvenFlo can also be used to alleviate arthritis pain, ischemia in varying locations of the body, PMS, muscle pain, hypertension, nerve pain, low energy, and anemia..."

Read the rest of the post here!

 http://ssnaturalhealings.blogspot.com/2015/05/even-flo-natural-supplement-to-manage.html

I don't know much about Even Flo, except what's mentioned from the post on SS Natural Healings, but it sounds good so far, I'm definitely going to look more into it.

Sickle Cell Crises

I'm having a SC crisis. It's a new and improved version on it because of the changes I've made to my diet, and it takes me longer to recognize what is actually happening to my body. Sometimes, I just think of it as pain. Normal pain. Which is something I'd almost never experienced before my dietary changes. It's been 3 years and my life has had a complete turn around. Okay, so details. The weather on the east coast (anyone else from NYC out there reading this blog? Shout out!) has been quite funny, as it varies from being warm/hot to chilly/windy/cold in the same day. I CANNOT handle these strange weather patterns and quick changes in temperature that all happen within the same day. My body does not like extreme weather. On Tuesday (it was hot) I went shopping with a friend, and we went to two locations, a shopping center and a mall. The sun was hot in the car and the mall was cool/cold. After we'd finished at the mall, the weather had cooled down and was getting cooler towards the evening. I went out twice more after she dropped me off home, and the second time I went out, I had to wear a jacket (note all the temperature changes in one day!). The next day, I spent most of the day on Tylenol Extra Strength in bed because my body was in crisis mode. By the end of the day, I was feeling mostly better (well enough to have dinner with a friend ;) ). Today, the weather was nice. It was warm for the majority of the day and again I went out with a friend. This entailed hopping on public transportation, which blasts the AC, heading back outdoors, heading indoors where it was cold, back outdoors where it was warm, repeat, repeat, repeat... In other words, it was a recipe for disaster! Aka another SC crisis. Such is life with SC. Temperature changes such as these are the bane of my existence. The sun literally burns my arms (my most susceptible to the cold body part... they're so skinny!) when I'm in it for too long and it hurts. Even in the summertime I have to carry 1 to 2 extra layers with me, either to cover myself from the sun or to keep myself warm when facing ridiculous AC subzero temperatures. It's a difficult season to deal with. I used to think that summer was the best season because it was warm all around and I didn't have to worry about winter making my bones ache. But summer hurts just the same as winter. The main difference is that in winter I can wrap myself up more and adequately prepare for the killer cold. In the summer, it's a double-edged sword. I get hot easily AND I get cold easily. Not only do I need to dress for the heat, but I have to consider the cold as well. My body can't handle it very well either. I'm doing everything I can and yet SC still is attempting to kick my butt and keep me down. But we are warriors, aren't we? The pain doesn't keep us down for very long and as soon as we can get up we can, don't we? It's not all roses, in fact, there are quite a few thorns along the way. This is the reality of life with SC, and I am keenly aware of the fact that there are many, many others out there whose symptoms are much worse than mine, who deal with more pain than I do, often on a daily basis. I write for them as well as myself. I write because I have a new hope and I want to share that with others as much as possible, that others too might now that there are life changes that can be made to help their health. It's not easy for sure, but it's life, and life, by definition, is not easy.

Even More Benefits of Castor Oil

Lately, I've been wondering if I can take Castor Oil internally without the laxative effect. A few months ago, the thought of taking Castor Oil internally would have really grossed me out, because as a kid, I was forced to drink it as a laxative (any other Caribbean kids out there who went through the same thing?). However, since I've discovered that Castor Oil is basically God's gift to humanity for things such as minor burns (I used it to treat my relaxer burn that I got on Saturday. It was mild, didn't pierce the skin but just hurt. The Castor Oil cleared the pain up in about 2 days. Gotta love it!), hair growth (my eyelashes have gotten thicker & longer since I've been using it on my face! But be careful though ladies, if you have a naturally hairy face, it'll only make it hairier! Lol ;-) ), acne (I use it almost every single night to treat my acne and I mix it with Cayenne Pepper to make it more potent. It's a powerful anti-inflammatory! Has saved my face from painful breakouts on countless occasions!), joint/muscle inflammation (like 2 days after my wisdom teeth extractions, and I went in twice for surgery, the swelling was all gone!), etc. I could go on. I really could. I love Castor Oil so much, I just have to keep extolling its benefits, because THIS STUFF REALLY WORKS. So, back to my main point. I was ordering stuff on Swanson Vitamins (my favorite website of all time!) and getting my new 16 oz bottle of Cold-Pressed, Cold-Processed Castor Oil, when i saw that it was available in pill form. Naturally, I looked into the benefits of taking it internally. Apparently it's good for the gastrointestinal system! I could definitely use benefits in that area. I'm no longer taking Cayenne Pepper Pills everyday, only as needed, and I usually don't get stomach pain anymore (YAYYYYY!!!! CHEER WITH ME FOLKS, MY STOMACH HAS BEEN A PROBLEM AREA FOR OVER 3 YEARS!!!!), but it would be great if the occasional stomach pains would go away. I'm thinking that maybe if I take the Castor Oil internally it will help my stomach issues out even further. In any case, here are some resources on the benefits of taking castor oil internally. Enjoy reading! :)

http://www.homeremediesweb.com/castor-oil-health-benefits.php

http://www.castoroilhome.com/health-benefits-of-castor-oil

http://www.stylecraze.com/articles/amazing-benefits-of-castor-oil/ 

http://castoroil.org/uses-and-benefits/

A Few Warnings About Using Castor Oil - Always Good to Know!

http://articles.mercola.com/sites/articles/archive/2012/04/28/castor-oil-to-treat-health-conditions.aspx

Let Us Now Address Castor Oil: Pain and Inflammation Treatment

Castor oil has saved my life, many many times. And I'm not talking about the stinky stuff, I'm talking about the cold-pressed, cold-processed, low on odor stuff. (But the stinky stuff would work just as well, I just can't stand the smell! lol.)  How did this story begin? Again, I have to thank my second oldest sister, who purchased Castor Oil off of Swanson Vitamins. I must also thank my cousin, who once recommended using topical treatments for joint/muscle pain. Well would you know that Castor Oil is great for treating joint and muscle pain? Among a bunch of other benefits that it has? There was that one day that I had some joint and muscle pain, I'm guessing it was in my hip, which has been a continuous source of trouble for me over the years, but a source of trouble that has shown improvement since I changed my diet, thank God. That one fateful day, I decided (probably out of irritation, annoyance, and desperation) to rub my hip or whatever joint it was with that sticky Castor Oil before I went to bed. Yes, it was a bit sticky and it had a bit of an odor, but who cares? Because by the time I woke up, the odor was gone. AND SO WAS MY PAIN. I call Castor Oil "God's Magic Oil" now. I cannot tell you how much I love the stuff. I was getting frequent pain in my ribs, a dull, annoying ache most of the time, and what did I end up treating it with? Castor oil. (The pain is mostly gone now, hasn't presented itself in months, I'll write another post to address that. :) I fell down the icy stairs in front of my house on January 18th, as I was on my way to class, landed right on my tailbone. If I hadn't been wearing my two coats (yes, two, I CANNOT deal with the cold weather) I probably would have broken my tailbone rather than bruised it. Let me tell you, I cried like a baby, it hurt so much. What reduced my misery and gave me back a normal quality of life after that great fall? Massages with Castor Oil (which I had to give myself, what an embarrassing place to have to get a massage, right near the tush! I still get some pain in my tailbone, but that's usually when I sit in a bad chair, and I can easily help that with a coccyx cushion. I am mostly 99% tailbone pain free!) I had two wisdom teeth pulled last Monday, and what did I use to treat the swelling once I got home? Warmed up Castor Oil. It took me a while to learn, but from the tailbone incident, I learned that Castor Oil works even better when it's warmed up! I put some in a little bottle, and place that bottle into a container of hot water, and voilà. A few minutes later, my Castor Oil is ready to use and ready to heal my pain once I massage it into the area that's bothering me. My neck also received a Castor Oil massage after my dental extraction, and so did my wrist, where my IV went, because my wrist was sore as well. I cannot say enough how much this stuff really, truly works."God's Magic Oil" is fantastic guys, and I would love for you to benefit from it too!

Of course, here are some lovely links where you can purchase your own bottle of Castor Oil, aka "God's Magic Oil." Hope this helps someone!
This is the one I purchase: http://www.swansonvitamins.com/home-health-castor-oil-cold-pressed-cold-processed-16-fl-oz-liquid
And here is one with free shipping. You gotta love Ebay:
http://www.ebay.com/itm/CASTOR-OIL-USP-GRADE-COLD-PRESSED-ORGANIC-PURE-HEXANE-FREE-16-OZ-/111453859391?pt=LH_DefaultDomain_0&hash=item19f32aee3f

Cherry Juice & Cherry Extract for Your Pain

There are natural alternatives to treating the pain of Sickle Cell, as well as natural alternatives to treating the condition overall. One thing I've never liked about taking painkillers is this: though they may treat the pain, desensitizing our bodies to it, they don't give us the strength that our bodies need to keep the pain away. They only treat a symptom, not the cause. And of course, there are the ever present side-effects! The Ibuprofen that I was told to take by my doctor ruined my stomach and it still hasn't healed completely, to my knowledge. I was prescribed a medication  to "treat" my stomach lining, which has been compromised by the formation of peptic ulcers (I have a post about it somewhere on this blog) and it made me feel worse!!! I decided not to take it, and instead take Cayenne Pepper in capsules daily (450 mg/80,000 Heat Units. Talk about hot!!!). The Cayenne Pepper pills have given me a sense of normalcy again, as they allow me to mostly eat without any trouble. Except, unfortunately for me, I must still avoid citric and acidic foods. Though I do break the rule occasionally to eat pasta or pizza. A girl's gotta live!

So, the Cherry Extract! For years, my second oldest sister kept telling me, "Try Cherry Extract, it's good for inflammation! It will help you with your pain!" For years, I was too skeptical, hurting, and miserable from  SCA to even bother trying her ridiculous natural pain remedy. I mean really, who on earth would ever consider Cherry Extract for pain? It's made from cherries for goodness sakes. Well, one fateful day in Sept. 2014, when I was feeling somewhat miserable with pain and had dragged myself to school only to find out I had no class that day (thanks, professor!), I came home and my dad and I decided to visit the Vitamin Shoppe, because they had mailed me a coupon and I just had to use it (see the manipulation there?). At the Vitamin Shoppe, I finally decided to ask where I could locate the Cherry Extract, which was so much cheaper with my lovely coupon (cheap, but not free! lol). Thus began my journey with Cherry Extract as part of my life. I found out that it really does help with pain and inflammation. I took several of the pills that day, as I was having some pain in my hip, besides my other dull, generalized body pains. I also took some Tylenol Extra Strength that day, which is my go to painkiller these days (just more proof of how my life has changed because I changed my diet).

The combination worked!!! Tylenol Extra Strength and Cherry Extract pills. Tylenol to treat the pain, and Cherry Extract to treat the pain AND the cause (inflammation!). Let me tell you, there are some moments when I take one Cherry Extract pill and one Tylenol Extra Strength, or even other times when I take two Cherry Extract pills to treat my pain, and they work. One of the things I LOVE LOVE LOVE about Cherry Extract is that IT HAS NO SIDE EFFECTS. NONE. IT'S ALL NATURAL. Now please, join me in my joy and say "Yay!!!!" After I purchased my first bottle of Cherry Extract from the Vitamin Shoppe, I switched to purchasing it online at Swanson Vitamins, a website that sells good quality vitamins and supplements, etc. My favorite thing about this website is that they often have sales, so I often purchase their lovely vitamins and supplements to keep me healthy. Of course, here is a link to my lovely Cherry Extracts, the exact brand that I purchase. I'm telling you, I really really love this stuff, and if you give it a shot, I think it may be able to help you too. Not only do they sell the dried extract from the cherry, but they also sell tart cherry juice, which my second oldest sister recently purchased for me to help me through my worst days. I haven't yet used it, but when the time comes, I will! And to add to this story of cherry greatness, I had 2 wisdom teeth pulled one week ago, and guess what I was taking besides the Codeine to help with the pain? Two cherry extract pills daily. I came off of the Codeine within three and a half days but have still been taking my lovely side-effect free cherry pills :) Anyone ready to give Cherry Extract a try? I hope it works for you too!

Click Here!

Steamed Broccoli and Plantains

...that is what I am having for dinner. There is some cauliflower on my plate too, actually more cauliflower than broccoli. I brought a frozen mix and the great thing about my dinner is that everything on my plate is high in calcium. I cut way down on my intake of Nattokinase. I was also able to get my hands on some goat's milk, which I rather like, and my ulcers seem to be doing a lot better. I am not sure how long it would take for the goats milk to completely heal my ulcers, I am also not sure how strong pasteurized goat's milk is in healing them because I'm sure the raw version has more nutrients in it, but I will keep drinking some everyday until I go back home. The fact that I haven't been feeling any stomach pain that feels ulcer related since I began eating more foods that would help heal them has been very encouraging to me. 

Sometimes, I get a bit frustrated with my diet and just want to eat anything I want. For instance, tonight I wanted to have frozen pizza and nachos for dinner. Since I had pizza yesterday, and I know that it's not that good for me with all those starches and all that white flour which probably is causing me to break out today and also is probably causing inflammation in my body, I compromised with myself by buying nachos. I will have pizza another day. Knowing that sticking to my diet is essential to my health and well-being is a highly motivating factor, especially on days when I'm feeling down because I'm not feeling well, and I wonder if sticking to my diet that day is worth the trouble. At this point, I probably shouldn't even call it a diet, because I've been making sure that the majority of what's on my plate each week is high in thiocyanate. It is probably safe to call it my new way of life. If I weren't dedicated to my health, I probably would have given up already. But seeing how my diet helped me over the summer, and again seeing how it's been helping me now, where I can mostly stick to my regular activities and be a "normal gal" for the most part is what keeps me going. Looking at my health charts and seeing all the information I've collected so far is also something that continues to inspire me to stay on the path that I am on. Again, I must reiterate that I haven't found a cure, and that if I don't stick to my diet, then my health won't stay as good as it is now. But the fact that I am able to feel a lot better than I used to because I am eating foods that are high in thiocyanate is truly encouraging, and I hope that other people will find the encouragement that they need here on these pages. 

This is My Story

When I was sixteen and learned what my disease truly entails, I became convinced that I would die by the time I was thirty. Up until that point, I hadn't really understood what it was, though the doctor had once given my sister and I a booklet explaining the disease, and what causes the pain. I began doing research about it as a result of having persistent wrist pain while playing the clarinet. My music teacher took it upon himself to call my parents and tell them about the pain I was experiencing because he wanted me to be well. I was taught to be independent, and didn't want my parents more involved with anything than they had to be, so him calling my parents was a big thing for me. He got in touch with my mom, and told her about my wrist pain, and she revealed my big, shameful secret. I had Sickle Cell Anemia, and that's what was causing all my problems.

Dealing with SCA all my life and being excluded from my gym classes as a decision by my mom had made me feel like an outcast. A guilty outcast who was different and had something to be ashamed of because I had a disease that I didn't understand that kept me from participating, and sometimes made me have pain. (I was also lactose intolerant which sometimes made me sick, but I didn't figure that out till I was fourteen. It was a difficult journey.) Because of that shame and guilt, I always felt that I had to hide it, so having my mother tell one of my favorite teachers my secret was a HUGE deal for me. Suddenly, he knew that something was wrong with me, and he as well as my mom and doctor were now advising me to take my Folic Acid regularly. At the time, I wouldn't, because when I would remember to take it was always at night, and whenever I take vitamins at night I have trouble sleeping. I always preferred having a night's sleep to taking the vitamin. 

My mom was convinced that if I just took my Folic Acid, I would be fine, and that's what she told my music teacher. I wasn't so convinced, and with the research that I began doing online, finding out what my disease really entailed made me pretty depressed. I remember sitting in my purple bathrobe one night, holding my clarinet after a practice session and a bout with wrist pain, and I'm pretty sure I burst into tears that I was going to die young because of my disease. With the ideas I had in my head by that time, all I wanted was to be married in my early twenties so that I could give my best years to my husband and my kids. I also developed a pretty morbid sense of mortality that I didn't stop talking about until my guidance counselor died of meningitis when she was twenty-eight.

Throughout the years, my sense of guilt about my disease did not diminish. As I got older and my symptoms grew worse, and I had to rely on my parents and sister(s) to take care of me when I was sick, it grew. Though my father almost died from it when he was in his twenties, he and my mother seemed to believe that I would be doing better if I only went to church more and had greater faith. Some of the things they would say did nothing to boost my morale, so I was really grateful to have my sister(s), who did take care of me without judgment and understood me. 

I must say that when I started taking my Folic Acid regularly, I did start to feel a bit better. But high school and college were incredibly demanding in their schedules, college less so than high school, and with their work loads, and with my small understanding of my disease and lack of information about healthy, natural alternatives, I know I abused painkillers by taking too many at once, and I may have done lasting damage to my body. I'm sharing my story because I don't want this to be yours or your child's. 

SCA can be devastating with the way Western medicine treats it. It doesn't offer up much besides heavy painkillers, and medicines with terrible side effects. I am sharing my story so that more people will know what they can do for themselves to get to a healthier place. It may be expensive to order extra supplements to take daily, it may be expensive to buy more vegetables to eat, but it is a lot more expensive to pay those hospital bills and to have to miss days or even months of school or work and to deal with all the pain. I am not in a picture perfect state of health, but I am in a much better place than I was in November, when all I wanted to do was kill myself, or over the summer, when the suicidal thoughts began crossing my mind in earnest. Please share this blog, please share my story, because it can get better. This is my story and it is real, and there are so many more out there who are doing better on natural alternative. Sickle Cell - Natural Healings is just one example. Maybe one day Western medicine will invent a cure that doesn't endanger patients lives as they go through it. For now, this is what I have to offer. I hope this helps.

Pain Pills: The Debate

I often debate with myself quite a bit before taking a pill for my aches and pains, knowing that with each pill I take, my resistance to its effectiveness is being increased. Here in France, I'm starting to feel a bit self-conscious about buying my painkillers. It's not like back home where I can walk into a large Walgreens and pick up a bottle of 100 Tylenol/Acetaminophen and pay for it with little interaction with the cashier. I have to ask a pharmacist for my Doliprane, and one night, when I was having crisis pain in my arm (I mentioned this a few posts back, it was more mild than an actual crisis because of my diet), the pharmacist asked me if I had a lot of pain, and I said yes, in my arm. Her words, "Vous-avez des douleurs importants?" still stick with me. Should I have explained to her that I have SCA? Not that I was really in the mood to explain anything as I was feeling pretty down. 

Based on the food list that I put up in my last post, I made a handy little health chart today. When I am able to scan it, I will add it as an image here. For now, visualize with me a bit. The chart starts with a list of (Thiocyanate) Rich Foods to Eat Daily or Multiple Times per Week - I added eggs to my list since they are packed with vitamins and I eat them almost everyday, so that is why I put Thiocyanate in parentheses. After that I have a list of my Daily Supplements, which are listed on the side of my blog, and hopefully next week will include Nattokinase, as I am preparing to order it from Amazon. I also have a space to note down if I took painkillers, if I stretched, and am using the back to write down any notes I have about the day. Today, for instance, I noted that I had pain in my right thigh (it's been there all day on and off and I have finally given in and taken a pill for it). On the chart, there is a slot for me to write the date for each day that I jot down information. I made 5 copies of it and am looking forward to being able to see more solid information about what works for me and what does not and how it makes me feel. The charts, combined with my blog, should be a good way to continue on my journey to health. :)

Moving On, Getting Healthier

Last night, I was feeling pretty down. I mentioned before that I have a skewed relationship with pain from having to deal with so much of it for so long, and I posted about my troubles in the Sickle Cell Warrior Group. People got back with their comments, and there are others who feel the way that I do, who are just tired of the pain. Thankfully I am feeling better today, and someone also posted a link about Discovite, which I am looking into and will also spread the word about. She said that she has been taking it and her health has been great. These natural alternatives are so much better than the harsh medicines with heavy side effects that the doctors prescribe to us. I think I mentioned before that my body has been feeling tense due to the winter cold, and I remembered that back in the Spring of last year, when I was taking a health class, I began a stretching routine that relieved some muscle pain in my legs that had been recurring for several years. Since I started that stretching routine, though I haven't continued with it, I have not had that pain get so bad that it made me have to stay home in bed. I have had muscle inflammation in that place, but because of the stretching, it never got back to the point where I couldn't walk, which was what it did before. Remembering that made me decide to go back to a stretch routine, and my body has been feeling a bit better though it is only my second day back to stretching. Simple yoga exercises, since the stretching exercises that I do are very close to yoga positions, seem like a good and easy way for me to build up my strength, which is something I really want to do. Back in the Spring when I was in my health class, I tried  to start a workout routine, but the things I was doing were too fast, too difficult, and too soon, so I will work on building my strength slowly but surely. One easy thing that I can do is to hold my leg stretch positions for longer because they don't overstretch my muscles, but will allow my legs and arms to become stronger. One thing that I really took away from my health class was something my professor said, which was that our genetics determine a small part about our body's health, but what we do for ourselves, our lifestyles, plays a greater part than genetics. With that in mind, I am encouraged to keep on the path I am on, and to go farther and keep getting better.

External Factors and All the Rest of It

Today I am feeling some minor aches and pains in my knees and shoulders, and I attribute these to external factors. It is wintertime, which is always a difficult season for me as the cold can trigger crises or aches, which it is doing now. The pain is minor, but being as how my relationship to pain is now terribly screwed up, the thought and feeling of pain get me a bit down. Then there is always that very real concern that the pain might become a crisis. As I was thinking about my diet, I felt the need to update and remind everyone that this is not a miracle cure that is done once and then can be forgotten. This is a lifestyle change, and requires dedication and consistency. At times I myself or maybe you might get frustrated or discouraged with this disease and not want to try anything new, but I want you to hold on. There is hope. We have already seen the worst of it, and the pain has had some of us begging for entrance at death's door. But we are still here, and we are still fighting. Trying a new diet that contains the nutrients our bodies so desperately need is worth the effort. If I could, I would heal all the diseases of the world, and cure the world of suffering. I cannot. But I do know this; being on this diet has given me my life back, and has restored my hope. My greatest desire is to see others benefit from this diet as well. My body has faced 22 years of sickle cell pain and high doses of painkillers, but now I know that it is being given the chance to heal and be restored. There may still be aches and pains here and there, but as I have said before, it is all manageable and I can go about my life more normally. I will continue to share my story in the hopes that others will be inspired on their own journeys to health.

My Decision to Go Public

For a week or two I have been thinking about making my journal public. What influenced me most was the blog Sickle Cell - Natural Healings, which is where I learned about Liquid Chlorophyll and Serrapeptase. That blog is a mother's experience raising a young son (about 4 or 5) who has Sickle Cell. I commented on her blog and she took the time to reply to me and explain what she has been using for her son. (Her regimen included Beet Juice, so I added beets to my diet, though juicing will release more nutrients if you can do that.) I appreciated the fact that she had taken the time to help me out. A few weeks before,  a Facebook friend had posted an article about how bone grafts of people with half matches were being done to cure Sickle Cell, and it worked in about 50% of the cases. I commented on his post with a link to the blog I posted above, and other links to the websites I had discovered over the summer that led me on my journey to health. He eventually put me in touch with someone who also has SC so that I could tell her what I've done.

This summer was incredibly difficult for me, and I seriously contemplated suicide because my relationship with pain was incredibly unbalanced. Pain with SC is not always normal or manageable by even the heaviest painkillers, as described in the first paragraphs of the article here. My greatest motivations to finding alternatives to my former lifestyle (which included drinking plenty of water, very little juice, and making sure I ate my veggies) was my upcoming 8 month stay away from home. I really wanted to be healthy and well, and lead a normal lifestyle. I was also incredibly tired of the pain. Anyone who suffers from chronic pain can tell you how exhausting it is to deal with, and I felt I was missing out on so much that I could be doing, if only I were well, if only my body to cooperate.

My research led me to a wealth of websites that I have listed in previous posts, which talked about Thiocyanate, among other things, and so I made a decision to change my diet from the moment that I knew what foods could help me. Making the decision to change was easy. What wasn't easy was sticking to my diet. My parents didn't understand why I wasn't eating their food all the time, and I didn't want to explain to people who didn't understand my disease (My father had it pretty bad when he was younger, but no longer has crises, to my knowledge. At one point my parents blamed one of my crises on the fact that I didn't go to church.). I was also getting tired of my diet, of eating the same foods, and so, I stopped. The changes didn't occur right away, but I had two more very bad crises (which again made me suicidal) in October and November. After the last one, I once more made the decision to change, and I have stuck with it. I want to live and I want to be as healthy as possible.

I have a dream of helping other people who have this disease. I want to share my experiences, what has worked for me and what hasn't. I want to help other people live better lives. Right now, I am tired, because I've been feeling so good that I've kind of forgotten that I need to rest as well. My disease hasn't been cured, but it sure does feel like it at times. I feel amazing when I don't have to think about it all the time, when it's not the ruling factor in my life. I won't let this thing rule me, and I don't want it to rule anyone else either. If my blog, my experiences, this information, can help at least one person, I'll be happy. If I can personally help anyone by commenting or emailing or just being there to lend an ear, I would be happy to do so.

A lot of people don't know about my experiences because in general I have a cheery outlook and love to cheer others up. But of my own pain, both physical and emotional, I have not much spoken. Now, I've decided that I've been quiet long enough. In the past, I used to be ashamed of my disease, I used to blame myself. I felt as though I were somehow at fault for all of my experiences. I know that now to be a lie, and I don't want anyone else to blame themselves either. No one controls their genetics. No one controls what life hands them. But what we can do is decide what we'll do with what we're given. This is what I've decided to do, and I hope I can help and inspire other people.

3 January

This is my second day on Serrapeptase. From reviews on Amazon, people have said that it has taken them up to 2 weeks to see results from it, and have gotten some weird side effects such as skin rashes. That doesn’t matter to me because I’m down for anything being as how this is a natural pain-killer and also is anti-inflammatory. I think I will turn this into an actual blog today.

The Big Update

November 1

I have been writing down the foods I have been eating for the past few days, I only stopped on Monday, 29 October, because my backache returned, but there was also left leg pain around the knee and thigh and right hip pain. I still suspect that I’m taking in too much sugar. Marie (henceforth MPB) asked me on the Thursday before vacation whether I was expecting a baby, evidence that my enlarged stomach has been noticed by others. Funny because I had noticed a few days before that it was enlarged and felt rather uncomfortable, and I felt the problem would be cured by a laxative, which did in fact help. Research has led me to believe that perhaps the cause was NSAIDs, which may lead to water retention.

Before I came to France, at the end of August/beginning of September, my period was accompanied by throatache, fever, and backache. The fever was brought down by Tylenol, which I don’t have with me now, the throat ache by honey and onions (it lasted a few days) and the backache by mineral ice and ibuprofen as well as Tylenol if I’m correct. (Of course, at that point I was questioning whether or not I should really come to France.) The fact that I’ve now remembered this is essential because this is the 3^rd such throatachey and backachey period I’ve had.

I notice that when I drink large amounts of water, I simply pee it out and pee frequently. The article that I just read[1] talks about how painkillers, specifically NSAIDs can cause water retention, and that drinking water isn’t what actually helps the cells get water. But having a diet high in healthy fats does. (Mind-blown).

Right now I’ve got inflammation in my ribs, and from what I saw last night, they actually almost look swollen on the right side. I know I don’t want to go to the hospital. I don’t want needles, I don’t want strong painkillers. I just want the pain to go away. I have no idea how long it’s going to take because the painkillers I take all have some side effect that I feel more quickly. Codeine gives me cramping and sends me to the toilet, NSAIDs give me severe cramps and send me to the toilet. Not a good forecast.

So now what? Back to studying my former diet to see what worked. Back to eating eggs everyday because they are high in the fat that my diet needs.

UPDATE: The article I recently cited says that too much water without adequate minerals could be a cause for water retention. But I’ve been drinking mineral water since I’ve arrived so that should be fine.

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[1] http://www.healingnaturallybybee.com/articles/water3.php

Day 13 – 9 July

Almost 2 weeks!!! Teddy grabbed my left arm today above the elbow which has ALWAYS been a problem spot but it’s not the usual SCKD pain, just a minor threatening that it could be there.

Breakfast

Labouillie

Lunch

Rice and Beans

Curried Lentils

Snack

Banana

Dinner

White Yams

Carrots and Beef

Curried Lentils

Snack

Corn Chips

Later Dinner

Maiz Moulin

White Sauce Pois

Spinach, Okra, Mushrooms, and Beef

Snack

Carroty Cream of Wheat

Day 12 – 8 July

Food poisoning this morning? Or pre-cramp pains? I’m supposed to be leaving for work shortly, but I’m stuck on the toilet with bad pains.

Breakfast

Bran Flakes

Banana

Lunch

Plantains, Yams, Spinach & Mushrooms

Snack

Sausage Empanada

Dinner

Rice w. Beans

Carrots w. Beef

Red Cabbage

Red Velvet (O.O)

Diarrhea and bloating all dayyyy. Granted, my period seems to be here, but this is some ridiculous diarrhea, like omg. My fingernails are still gray around the edges on my left hand.

Day 11 – 7 July

A bit of joint pain last night/this morning, in the a.m. times. Perhaps I’ve not been drinking enough water lately? I also forgot to take my folic acid at the proper time one of the past few days. The stairs haven’t been bothering me as much lately. I’ve been up and down pretty frequently, with no negative consequences. Is this the beginning of a new life?

Breakfast

White Yams w. Scrambled Eggs

Red Velvet

Snack

Red Velvet

Curried Lentils

Lunch

Plantain

A little more joint pain earlier.

Dinner

Red Velvet

Curried Lentils

Dinner

Apple Puff

Batata w. Spinach and Mushrooms

Noticed today that the fingernails on my right hand were really dirty, but it turns out it’s not dirt, there’s just a layer of black under my nail bed on my right thumb, and the cuticles and nails of the other fingers look dirty. Looking for the causes now. Thiocyanate overload??

It would seem that I have cyanide poisoning, which could explain my excess tiredness and confusion/loss for words/inability to find the right words recently. I shall eat normally every other day and have less Thiocyanate containing foods on a regular basis.

I’ve also been having trouble falling asleep the past few nights, wonder if that’s related. And the joint pain! Or perhaps these are merely cinnamon stains? It’s difficult to say…

"Finally, chronic consumption of cyanide-containing foods, such as cassava root or apricot seeds,^[1] may lead to cyanide poisoning.

Overall, depending on its form, cyanide may cause toxicity through parenteral administration, inhalation, ingestion, or dermal absorption. (See the chart below.) [1]

Gradual ingestion. The gradual ingestion of cyanide can cause general weakness, confusion, bizarre behavior, excessive sleepiness, shortness of breath, seizures, headaches, dizziness and coma. Over time, the cherry colored skin will develop and even some of the cyanide poisoning symptoms pertaining to an acute digestion will begin to show up as well. If you're showing these signs, don't ignore them. Especially if you work in a field that exposes you to things that can give off cyanide.[2]"

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[1] http://emedicine.medscape.com/article/814287-overview

[2] http://www.mademan.com/mm/cyanide-poisoning-symptoms.html

Day 10 – 6 July

I haven’t been feeling the need to keep this up urgently. I’ve been feeling better lately. I don’t feel fragile like I used to. I’ve walked a lot within the past few days, and my leg muscles haven’t attacked me. I had a bit of muscle cramping this morning, but I had plantains today so I think the potassium helped with that, and the cramping was pretty minor. A bit of arm pain around the elbow last night, but I think that’s because I didn’t drink enough water yesterday. This is different. I like the way I feel. I feel good.

Breakfast

White Yams w. Scrambled Eggs

Chamomile Tea

Lunch

Sweet Plantain

Later Lunch

Sweet Plantain

Red Velvet  (^_^)

Dinner

Curried Lentils

Day 9 – 5 July

Today I feel no repercussions for yesterday’s excessive walking. Also went to the beach today and was cold, but not body hurting lots cold. Hmm… This diet seems to be treating me well…

Breakfast

Cream of Wheat

Lunch

Scrambled Eggs w. Légume

Snacks

Oatmeal Cookie

Lindsay Butter Crunch Cookies

A few Doritos

Dinner

White Yams

Day 8 – 4 July

Breakfast

Cream of Wheat

Lunch

A bit of Mangú

Dinner

Angel hair pasta with veggies and lots of bread

Midnight Snacks

Strawberry coconut milk smoothie

Mangú

Walked a lot today in Manhattan. Super bloated tonight.

Day 7 – 3 July

Bloated last night and this morning. Could it be the Cream of Wheat, the Barley, or the Spinach? Which of these foods is the culprit?

Breakfast

Banana

Brunch

Creamed Spinach with Coconut Milk

Banana

Lunch

Mashed Sweet Potatoes

Later Lunch

Strawberry Coconut Smoothie

Mangú

Feeling pretty good today. I’m not sure if it was less extreme or what, but the temperature change from the streets to the inside of the store didn’t bother me as much. The wind hasn’t bothered me much today either.

Dinner

Mangú

Salmon in Coconut Cream Sauce (tasted way better today than it did the first day I made it. I also ate it cold.)

Later

Pomegranate

Peanut Butter Cup