Showing posts with label sickle cell anemia treatments help. Show all posts
Showing posts with label sickle cell anemia treatments help. Show all posts

Tuesday, May 19, 2015

The Reality Is...

Yes it's hard. Yes, life sucks sometimes. Yes, sometimes the pain is so bad you want to just leave this life for the next one. Yes, it's difficult for people to understand what you're going through. It's a nightmare at times and it just seems to keep repeating itself. Sometimes, that is the reality of Sickle Cell. Thank God for the people in our lives who are there to care for us, carry us when we can not walk (sometimes literally, other times mentally, emotionally, physically), love us through our deepest trials and pains. Some of us out there don't even really have a network of people to lean on and we are wading through this life just holding on to any help we can get. I know what it's like. Just because I have changed my diet and I have seen great improvements in my health, doesn't mean that I've been cured. I still get pain at times, pain that seems to want to take over my body and have my life stop being my new normal. Right now, my right ankle hurts. Yesterday, it was my left ankle. A bit earlier, my stomach was hurting, and I think about how it was the painkillers - that I only took to manage the pain brought on by the disease - that ruined my stomach in the first place. I was just remembering how it was my oldest sister who ran downstairs and got honey and mixed it with Cayenne Pepper on a spoon and made me take it when I was curled up on my bed with stomach pains from the damage the NSAIDs had done to my stomach. I DID NOT want to try her stupid home remedy. Does she know she helped save my life that day? I remember how my second oldest sister, time and time again tried to get me to try Cherry Extract when I was suffering from hip pain which made me nearly immobile - kept me from getting out of the house and from going to work or school - and I couldn't deal with too many stairs for years after I had my hip crisis in the Summer of 2008, which I believe left part of my hip muscles infarcted. Finally, in September 2014, I tried her stupid Cherry Extract. And found out that it worked. Both of my sisters' stupid home remedies actually worked. They helped to restore my desire to live, they helped restore me to health, and helped me get on a path to desiring to live instead of being ruled by the pain, by the emotional, mental, physical, sometimes spiritual turmoil that sometimes comes with it.
I share my story and these resources and the things that I do to remain healthy because I know it makes a difference. People may not comment on these posts, but I see the number on the bottom of this page rising, and I know that there are thousands of people out there who have benefited from these words. So I will continue to post them, whether I get comments or not, as I am able to. I just want people out there to know that there is hope. No, I'm not talking about a cure, I wish I was. But, I am talking about natural treatments, natural things that you can add to your diet that can help you live a better quality of life. You may not see immediate changes. Don't give up hope. Incorporating these changes takes time. Give yourself time. But don't be afraid to try something new. Don't just read and forget about or dismiss these stupid home and natural remedies. Read them and let them stick in your life. Try them and see if they work for you. I have failed along this journey so many times. Royal Jelly? Epic fail. Nattokinase and Serrapeptase? Epic fail. Trying to treat my ulcers with red cabbage and aloe vera? Super epic fail! Beets? I can't eat them anymore. But... I haven't given up. My diet is pretty limited now... but... I haven't given up. I thank God for the people who have been there to care for me and encourage me along the way. I couldn't have done it without them. Because of these people, I am still here today. Because of these people, I can offer you encouragement. There is hope. There are options. Try, try, try. Read, share, and try some more. There are resources out there besides painkillers and I want the whole world to know so that the suffering caused by Sickle Cell can be decreased. So, please. Read, try, share, and read some more. I hope that this helps someone, God bless. :)

Monday, July 9, 2012

Day 13 – 9 July

Almost 2 weeks!!! Teddy grabbed my left arm today above the elbow which has ALWAYS been a problem spot but it’s not the usual SCKD pain, just a minor threatening that it could be there.

Breakfast
Labouillie
Lunch
Rice and Beans
Curried Lentils
Snack
Banana
Dinner
White Yams
Carrots and Beef
Curried Lentils
Snack
Corn Chips
Later Dinner
Maiz Moulin
White Sauce Pois
Spinach, Okra, Mushrooms, and Beef
Snack
Carroty Cream of Wheat

Sunday, July 8, 2012

Day 12 – 8 July

Food poisoning this morning? Or pre-cramp pains? I’m supposed to be leaving for work shortly, but I’m stuck on the toilet with bad pains.

Breakfast
Bran Flakes
Banana
Lunch
Plantains, Yams, Spinach & Mushrooms
Snack
Sausage Empanada
Dinner
Rice w. Beans
Carrots w. Beef
Red Cabbage
Red Velvet (O.O)

Diarrhea and bloating all dayyyy. Granted, my period seems to be here, but this is some ridiculous diarrhea, like omg. My fingernails are still gray around the edges on my left hand.

Saturday, July 7, 2012

Day 11 – 7 July

A bit of joint pain last night/this morning, in the a.m. times. Perhaps I’ve not been drinking enough water lately? I also forgot to take my folic acid at the proper time one of the past few days. The stairs haven’t been bothering me as much lately. I’ve been up and down pretty frequently, with no negative consequences. Is this the beginning of a new life?

Breakfast
White Yams w. Scrambled Eggs
Red Velvet
Snack
Red Velvet
Curried Lentils
Lunch
Plantain

A little more joint pain earlier.

Dinner
Red Velvet
Curried Lentils
Dinner
Apple Puff
Batata w. Spinach and Mushrooms

Noticed today that the fingernails on my right hand were really dirty, but it turns out it’s not dirt, there’s just a layer of black under my nail bed on my right thumb, and the cuticles and nails of the other fingers look dirty. Looking for the causes now. Thiocyanate overload??
It would seem that I have cyanide poisoning, which could explain my excess tiredness and confusion/loss for words/inability to find the right words recently. I shall eat normally every other day and have less Thiocyanate containing foods on a regular basis.
I’ve also been having trouble falling asleep the past few nights, wonder if that’s related. And the joint pain! Or perhaps these are merely cinnamon stains? It’s difficult to say…
"Finally, chronic consumption of cyanide-containing foods, such as cassava root or apricot seeds,[1] may lead to cyanide poisoning.
Overall, depending on its form, cyanide may cause toxicity through parenteral administration, inhalation, ingestion, or dermal absorption. (See the chart below.) [1]
Gradual ingestion. The gradual ingestion of cyanide can cause general weakness, confusion, bizarre behavior, excessive sleepiness, shortness of breath, seizures, headaches, dizziness and coma. Over time, the cherry colored skin will develop and even some of the cyanide poisoning symptoms pertaining to an acute digestion will begin to show up as well. If you're showing these signs, don't ignore them. Especially if you work in a field that exposes you to things that can give off cyanide.[2]"


[1] http://emedicine.medscape.com/article/814287-overview
[2] http://www.mademan.com/mm/cyanide-poisoning-symptoms.html

Friday, July 6, 2012

Day 10 – 6 July

I haven’t been feeling the need to keep this up urgently. I’ve been feeling better lately. I don’t feel fragile like I used to. I’ve walked a lot within the past few days, and my leg muscles haven’t attacked me. I had a bit of muscle cramping this morning, but I had plantains today so I think the potassium helped with that, and the cramping was pretty minor. A bit of arm pain around the elbow last night, but I think that’s because I didn’t drink enough water yesterday. This is different. I like the way I feel. I feel good.

Breakfast
White Yams w. Scrambled Eggs
Chamomile Tea
Lunch
Sweet Plantain
Later Lunch
Sweet Plantain
Red Velvet  (^_^)
Dinner
Curried Lentils

Thursday, July 5, 2012

Day 9 – 5 July

Today I feel no repercussions for yesterday’s excessive walking. Also went to the beach today and was cold, but not body hurting lots cold. Hmm… This diet seems to be treating me well…

Breakfast
Cream of Wheat
Lunch
Scrambled Eggs w. Légume
Snacks
Oatmeal Cookie
Lindsay Butter Crunch Cookies
A few Doritos
Dinner
White Yams

Wednesday, July 4, 2012

Day 8 – 4 July

Breakfast
Cream of Wheat
Lunch
A bit of Mangú
Dinner
Angel hair pasta with veggies and lots of bread
Midnight Snacks
Strawberry coconut milk smoothie
Mangú

Walked a lot today in Manhattan. Super bloated tonight.

Tuesday, July 3, 2012

Day 7 – 3 July

Bloated last night and this morning. Could it be the Cream of Wheat, the Barley, or the Spinach? Which of these foods is the culprit?

Breakfast
Banana
Brunch
Creamed Spinach with Coconut Milk
Banana
Lunch
Mashed Sweet Potatoes
Later Lunch
Strawberry Coconut Smoothie
Mangú

Feeling pretty good today. I’m not sure if it was less extreme or what, but the temperature change from the streets to the inside of the store didn’t bother me as much. The wind hasn’t bothered me much today either.

Dinner
Mangú
Salmon in Coconut Cream Sauce (tasted way better today than it did the first day I made it. I also ate it cold.)
Later
Pomegranate
Peanut Butter Cup

Monday, July 2, 2012

Day 6 – 2 July

Feeling good today. Is this going to keep getting better, will it stagnate at this level? It’s been a week, for which I’m happy (^_^)

Breakfast
Banana
Cream of Wheat
Lunch
Chicken
Indian Curried Barley Pilaf
Creamed Spinach with Coconut Milk
Later Lunch
Indian Curried Barley Pilaf
Mangú
Dinner
Mixed Vegetables Burrito

Sunday, July 1, 2012

Day 5 – 1 July

Minor back pains this morning, they seem to be threatening me with death. My left leg was doing some weird things last night, near the hip and around the upper knee. Kind of like pain but also like, yeah don’t really pay attention to me. So I didn’t and went on with my life. The pain’s not there now. My muscles are a bit sore in my calves though. I wonder if I’m getting too much potassium. I also wonder if I’m lacking iron because I was feeling tired yesterday and the day before. Must discover the cause of this. Perhaps I should increase my water intake?

Breakfast

Banana
Cream of Wheat
Lunch
3 Chicken Nuggets w. Ketchup (-__-‘)
Snack
Mangú
Dinner
Indian Curried Barley Pilaf
Creamed Spinach with Coconut Milk
Salmon in Coconut Cream Sauce
Strawberry and Coconut Milk Smoothie

I feel tall today. My back was hurting a bit earlier, but it’s only a minor death threat and it went away.

Later Dinner
Strawberry and Coconut Milk Smoothie
Much Later Dinner
Baked Chicken w. Rice and Green Peas