Having Sickle Cell Anemia can be pretty scary. The disease is entirely unpredictable. One never knows when a pain crisis will strike and just how severe it may be. My health has drastically improved in the past year and a half, since I changed my diet and began focusing on eating more fruits and vegetables, and consuming a lot of foods that are high in Thiocyanate, such as plantains, cabbage, yuca, etc. More recently, as of August, I added Moringa to my diet, which I researched online and found that it helps with reducing sickling. Combined, all of the things I do have greatly helped to improve my quality of life.
However, another complication that I can't do anything about is the cold weather, which increases the pain. I'm currently at a point where I rarely have to take painkillers, which is a miracle, in and of itself. One thing that I always have to keep in mind is that my routine is not a cure, nor is it a one time thing. If I don't stick to my routine, if I don't stay dedicated to being healthy, I start to once more feel the effects of the disease. My new motto is, "No health, no life." My health is something that I know always put first, and it's something that I think about constantly. I'm always thinking about what foods I'm putting into my body and how they will affect me. Keep in mind, I also have peptic ulcers as a result of using NSAIDs, and those are another thing that affect my health.
SCA comes with many emotional ups and downs as well. A chronically painful disease is one that takes a lot out of the carrier, regardless of whether they show it or not. One of the greatest benefits of my new and improved diet is that I suffer 95% less pain that I used to. The sick thing is, when my health started to get better, at first I actually missed the pain. That's how used to it I was. My tolerance for pain has decreased since my health has gotten better, but my tolerance for painkillers has decreased as well, so it takes less to help me feel better.
I still have my bad days, when I have moderate pains, and I start to feel really down about everything. It's more the fear of what my disease possibly could make me suffer and the memories of what I have been through that bring me down, than the actual effects of the pain. But overall, with my new routine, my health has never been better. My hope is that my story can bring hope and help to those who have SCA, and my new mission is to begin helping out with SCA awareness, which I will be doing by helping out with Sickle Cell Warriors.
